American Brain Society Works To End Stigma

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From left: Jay Maty, an American Brain Society board member, and Dr. Angela Guarda, associate professor of psychiatry at the Johns Hopkins University School of Medicine. (Photo courtesy of the American Brain Society)

The American Brain Society (ABS) was founded by J.A. Boulton to educate the public about the stigma and effects associated with brain disease. Their headquarters is in Danbury, CT, and they received their nonprofit organization status in 2018 by specifically funding research and raising awareness.

“In speaking with doctors, Boulton realized scientists knew very little about how to treat the over 150 brain diseases and disorders,” nonprofit consultant Jo-Ann Hertzman said. “Brain diseases and disorders include everything from memory disorders, such as Alzheimer’s disease to Autism and the many addictions and mental health disorders, such as bipolar, PTSD and more. Much like the American Cancer Society put all the cancers under one roof, ABS is putting all the brain diseases and disorders under one roof.”

Boulton’s family has personally experience suffering from brain disease and he is determined to end the suffering for others.

“The time for ABS is now,” Hertzman said. “Much like the American Cancer Society was needed, ABS is needed for the brain. Whether directly or indirectly, these brain diseases affect every American family.”

ABS gathers research for several diseases to further the learning and understanding for those families involved. They connect scientists and those personally affected by these diseases to help gain the tools necessary to combat the stigmas. Members involved in the community will leave with a new network of support as well as the information they need to keep moving forward.

Psilocybin and depression, anorexia nervosa, Parkinson’s, psilocybin and alcoholism, as well as PTSD, are just some examples of the diseases researched through ABS. They partner with doctors and professionals from Johns Hopkins University School of Medicine, NYU Langone Health and Yale University School of Medicine to get the best results and information possible.

In the short time they’ve been working, ABS has raised about $51,000 to date, as well as incorporated 37 brain disorder and mental health resources and 55 educational and caregivers’ articles and videos.

“Since creating our website, we have increased our social media presence and are engaging with more than 30,000 people,” Hertzman said. “Many of them are either directly affected by brain disease and mental health disorders or they are caregivers or are indirectly affected.”

In 2020, ABS hopes to build a live community where those affected can support one another as well as work to increase the number of scientists and research projects.

To learn more about the research, community and programs American Brain Society offers, or to make a donation, visit americanbrainsociety.org, email info@americanbrainsociety.org or call 202-768-8000.

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