A Night To Remember At The David B. Shepard Gala

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Susan Schneider Williams spoke about the disease and how it affected her husband Robin Williams.

The Garden City Hotel was the scene of a sold-out venue on July 20, when friends, family and celebrities came to the David B. Shepard Gala, A Night To Remember. The sellout crowd had the opportunity to bid on hundreds of items including raffles, a silent auction and Live Auction with items generously donated to the cause.

A special guest appearance was actress comedienne Sherri Shepherd, cohost of The View, whose witty repartee opened the dinner.

Often a taboo subject, but a reality for many, Lewy Body Dementia (LBD) is a disease which affects an estimated 1.4 million families in the United States. It is a type of illness that worsens over time.

Dementia is a common term used especially with the aging. Dementia is defined as a chronic or persistent disorder of the mental processes caused by brain disease or injury and marked by memory disorders, personality changes, and impaired reasoning. Lewy Body Dementia is an umbrella term for Parkinson’s disease dementia and dementia with Lewy bodies. Lewy bodies are abnormal aggregates of protein that develop inside nerve cells. They are spherical masses that displace cell components and can be found in the brainstem or the cortex.

The cause for LBD is unknown. The disease worsens over time. Symptoms may include fluctuations in alertness, visual hallucinations, slowness of movement, trouble walking and rigidity. LBD also affects autonomic body functions, such as blood pressure control, temperature regulation, and bladder and bowel function. Progressively debilitating, LBD can also cause people to experience visual hallucinations or act out their dreams. Excessive movement during sleep and mood changes such as depression are common.

Susan Schneider Williams, the wife of Robin Williams, was on hand to speak passionately about LBD and about “the terrorist inside my husband’s brain.” She is dedicated to spreading awareness of this disease. She currently serves on the board of the directors of the American Brain Foundation. Each guest received a book of poems titled Lewy Body Days, by Joop Bersee, who began writing the poems after he was diagnosed with dementia in February 2017. The fight that is fought with family, caregivers and health care workers is just beginning for him.

Sherri Sheperd

“Mr. Bersee speaks from inside a place where the surreal walls of dementia are being reinforced around him. Through his poetic courage, he allows us powerful insight into what it is like to live with this disease,” said Williams.

“There is no cure for this dreaded disease, but the symptoms can be managed,” according to Board Certified Neurology & Neurophysiologic Dr. Olga L. McAbee. The treatment addresses the hallucinations and other symptoms with a pharmaceutical regimen.

The first LBD Gala honored David B. Shepard, founder of David Shepard Associates, Inc., a successful direct marketing and database consulting firm. In 2010, he had to retire because of the disease and the gala was renamed after him.

For more information on LBD, visit the Lew Body Dementia Association at www.lbda.org.

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Elizabeth Johnson is editor of Manhasset Press and Manhasset Press Magazine. Growing up in nearby Garden City and attending New York University, she is well-versed in the locale and knowledgeable about the beat she covers. Her community involvement is extensive and includes the Manhasset SCA, Kiwanis International, Manhasset Chamber of Commerce, St. Mary’s Church, and various civic and local charitable organizations. Curious by nature, her travels, community service, love of the arts as well as local sports give her the inside view to unique content. During her time at Anton, she has received several awards from the New York Press Association and the Press Club of LI, including the coveted "Best Community Newspaper" several years in a row.

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