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RSDSA Awareness Walk
September 15, 2018 @ 8:00 am - 2:00 pm
On Saturday, Sept. 15, from 8 a.m. to 2 p.m., hundreds of chronic pain patients fighting complex regional pain syndrome will walk through Eisenhower Park to bring awareness to the painful disease. This will be Reflex Sympathetic Syndrome Association’s third annual Long Island Awareness Walk for Complete Regional Pain Syndrome (aka Reflex Sympathetic Dystrophy).
- 8 a.m.: Walk Registration and Education Tent opens at Dogwood Field; bagel breakfast
- 8:45 a.m.: Introductions, presentations and commemoration with VIP guest speakers
- 9:15 a.m.: Walk commences over 1k and 2.5k reserved paths
- 11:30 a.m.: BBQ lunch
- 12:30 – 2 p.m.: Raffles, children’s crafts, live entertainment by WBAB 102.3, patient support and socializing
*All times are approximate
Nicknamed the ‘suicide disease,” CRPS is a rare neuro-inflammatory disorder that results from acute, mild to severe traumas of tissue, muscle and nerves from surgery, bruise, needle insertion, bracing and more.
CRPS has been rated on the McGill Pain Index as the most painful disease known to man — even more painful than cancer, amputation and childbirth, yet few medical professionals are experienced enough to diagnose and treat the disorder, which results in extreme burning, skin discoloration, muscle wasting, debilitating pain and weakness, internal medical complications and other problems. Early diagnosis is crucial to prevent CRPS from migrating.
There is no cure for CRPS, and available treatments are very limited and ineffective.
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